Panel 2: Physical & Occupational Therapy - Michele Weaver, PT and Kerri Vryhof, OTR
Patient Support Blog
“Current Treatments”- Dr. George (MSA Conference, Pt 3)
"Current Treatment Options for MSA" - Edwin George II, MD, PhD, (Wayne State University, Detroit, USA)
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
MSA BLOGS
Caregiver’s Blog
“On Speech & Swallowing” – (MSA Conference, Pt 6)
Panel 1: Speech & Swallowing - Jennifer Kileny, SLP and Rebecca Wallace, SLP
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
Advocate’s Blog
GIVE HELP, GIVE HOPE – RAYS OF HOPE HOLIDAY FUNDRAISER!
GIVE HELP, GIVE HOPE – ANNOUNCING THE 2020 RAYS OF HOPE HOLIDAY FUNDRAISER! Help Us Support MSA Research! Help Us Support MSA Patients! Help Us Support MSA Awareness! Help Us Educate Medical Professionals! 4 Ways to Support Our Efforts: Create #JustGiving Holiday...
#GIVINGTUESDAY – ON DECEMBER 1 – FACEBOOK MATCH FUNDRAISER!
Announcing Defeat MSA Alliance #GivingTuesday 2020 Facebook Matching Fundraiser! Facebook has announced up to $100,000 Matching Funds Available on December 1, 2020 for #GivingTuesday. If you are giving this year - please consider helping Defeat MSA with a Facebook...
“Early Days and Mission Pillars” – Dr. B (MSA Conference, Pt 1)
Dr. Pratik Bhattacharya, neurologist and co-founder of Defeat MSA Alliance discusses the charity's early days, its mission and the main speakers of the conference. ("Welcoming Remarks" - Defeat MSA Alliance Global MSA Conference, Pt 1)
Researcher’s Blog
“ANNOUNCING NEW MSA GENETIC STUDY IN CANADA”
November 23, 2020 WINDSOR, ON - Defeat MSA Canada/Vaincre L’AMS Canada, Defeat MSA Alliance: Defeat Multiple System Atrophy and MSA United International enthusiastically announce a new genetic study in partnership with the Canadian Open Parkinson's Network (C-OPN)....
“REM Sleep Behavior Disorder, Genetics and MSA” By Lynne Krohn (McGill, Montréal)
By Lynne Krohn, PhD student, McGill University (Montréal, Canada) A major goal in MSA research is to develop successful clinical interventions which can stop or slow the disease progression. Currently, there are options available for symptomatic treatment of MSA, but...
“On MSA Research” – Dr. Brundin (MSA Conference, Pt 5)
Research Keynote: "Possible Disease Mechanisms and Research into Potential Treatments" - Patrik Brundin, MD, PhD
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“Physical & Occupational Therapy” – (MSA Conference, Pt 7)
Panel 2: Physical & Occupational Therapy - Michele Weaver, PT and Kerri Vryhof, OTR
“Current Treatments”- Dr. George (MSA Conference, Pt 3)
"Current Treatment Options for MSA" - Edwin George II, MD, PhD, (Wayne State University, Detroit, USA)
ONLINE GROUPS & VIDEO CHAT SUPPORT SESSIONS GUIDELINES
DEFEAT MSA UNITED FACEBOOK GROUPS & VIDEO CHAT SUPPORT MEETINGS GUIDELINES (These policies are subject to change...