Toll free: 1-855 542-5672 (1-855-KICK-MSA)

Patient Support Blog

MSA BLOGS 

Caregiver’s Blog

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Advocate’s Blog

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DUSTIN AND CARLA RIOS DAMIEN GAFFNEY VINCE NEIL AND RAIN HANNAH MIKE BOYLAN, JR DR GREG AUNER DR ALESSIO DI FONZO...

New Charity and New Partnership Moves Forward – Down Under!

New Charity and New Partnership Moves Forward – Down Under!

DEFEAT MULTIPLE SYSTEM ATROPHY AUSTRALIA AND NEW ZEALAND, Ltd., a newly formed nonprofit, the first of its kind in Australia and New Zealand has forged a  partnership with Defeat MSA Alliance. Already a global leader in the fight against Multiple System Atrophy, the...

BIOHAVEN M-STAR STUDY & COVID19

BIOHAVEN M-STAR STUDY & COVID19

As was posted in many of the groups last week, Biohaven Pharmaceuticals answered some of our questions regarding their current drug trial amid the coronavirus pandemic period. They composed their answers into a Q and A document. TRIAL PARTICIPANT QUESTIONS AND ANSWERS...

Researcher’s Blog

“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

Sticking with Multiple System Atrophy

Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement.

You May Also Like…