MSA
RESEARCH

BRAIN
DONATIONS

Brain donations could help researchers find the cause(s), more treatments and a cure for MSA. The examination of brain tissue is vital in this research process. A brain donation involves a simple procedure and it does not hinder the funeral or any burial plans. In some cases, the cost of brain procurement (when a technician removes it and sends it to a brain bank) can be offset by a grant from an institution or charity.

For many, a brain donation is the ultimate gift for generations to come – because MSA brain research could help bring about more treatments, more ways to help diagnose MSA and eventually, a cure!

If you are a patient and are considering a brain donation, please contact us, using the information below. There are several institutions in US, Canada and other countries as well, that are currently doing MSA related brain research and desperately need brain donations. There is a place on the form to indicate the choice of brain bank, if applicable.

For families in the USA or Canada, we will help you facilitate a brain donation. Because Defeat MSA is an IRS approved public charity, we do not collaborate with nor support any 3rd party profit-driven brain procurement organizations or companies. 

Defeat MSA does not require a fee nor do we request any money from you, in order to help you donate a brain to any brain bank.

Regarding why we ask for your power of attorney: brain banks generally require the contact information for the donor’s power of attorney and the current physician, in addition to the donor information.

All information submitted on this form is strictly confidential. No specifics will be shared with the brain bank until we make our first contact with you as the potential donor or your personal representative.

If you have been diagnosed with MSA, are interested in donating your brain and need help facilitating this ultimate and lasting gift, please call us toll free: 1 855 542-5672 (1 855 KICK-MSA) or email us: braindonation@defeatmsa.org

If calling, please leave your name, number, reason for your call and best time to return your call. Thank You!

  • Contact Information

  • Power of Attorney Information

  • Physician Information

MSA
RESEARCHER BLOG

Dr. Wouter Peelaerts

Dr. Wouter Peelaerts

Member, Science and Medical Advisory Board

“Sticking With Multiple System Atrophy” – Dr. Wouter Peelearts (Van Andel Research Institute)

Sticking with Multiple System Atrophy

Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement.

THE EXPERTS

A SPECIAL THANKS TO OUR MSA RESEARCHERS & HEALTH PROFESSIONALS AROUND THE WORLD!

Dr. Patrik Brundin

Van Andel Research Institute, Grand Rapids, Michigan, USA

Dr. Edwin George

Wayne State University, Detroit, Michigan, USA

Dr. Pravin Khemani

Swedish Neuroscience Institute, Seattle, Washington, USA

Dr. Janice Holton

University College London, London, United Kingdom

Dr. Horatio Kaufmann

Dysautonomia Center, New York University, New York, New York, USA

Dr. Wolfgang Singer

Mayo Clinic, Rochester, Minnesota, USA

Dr. Eduardo Benarroch

Mayo Clinic, Rochester, Minnesota, USA

Dr. Shilpa Chitnis

University of Texas Southwestern Medical Center, Dallas, Texas, USA

Dr. Walter J. Koroshetz

National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health, Bethesda, Maryland, USA

Dr. John Q. Trojanowski

University of Pennsylvania, Perelman School of Medicine, Philadelphia, Pennsylvania, USA

Dr. Paola Sandroni

Mayo Clinic Rochester, Minnesota

Dr. David Robertson

Vanderbilt Autonmic Dysfunction Center, Nashville, Tennessee, USA

Dr. Philip Low

Mayo Clinic, Rochester, Minnesota, USA

Dr. Praveen Dayalu

University of Michigan, Ann Arbor, Michigan, USA

Professor Gregor Wenning

Medical University, Innsbruck, Austria

Dr. Vik Khurana

Brigham and Women's Hospital, Harvard Medical School, Cambridge, Massachusetts, USA

Professor Eliezer Masliah

University of California, San Diego, California, USA

Dr. Matt Huentelman

T-Gen, Phoenix, Arizona, USA

Professor Glenda Halliday

Sydney Medical School, University of Sydney, Sydney, Australia

Dr. Aaron Ellenbogen

Michigan Institute for Neurological Disorders, Farmington Hills, Michigan, USA

Professor Werner Poewe

Innsbruck Medical University, Innsbruck, Austria

Dr. Un J. Kang

Irving Medical Center, Columbia University, New York, New York, USA

Dr. Charbel Moussa

Georgetown University, Washington, DC

Dr. Thomas Chelimsky

Medical College of Wisconsin, Wauwatosa, Wisconsin, USA

Dr. Ryan Walsh

Barrow Neurological Institute, Phoenix, Arizona, USA

Dr. Chuck Ide

Weestern Michigan University, Kalamazoo, Michigan, USA

Dr. Naill Quinn

University College London, London, United Kingdom

Dr. Roy Freeman

Beth Israel Deaconess, Boston, Massachusetts, USA

Dr. Michael Janitz

University of New South Wales, Sydney, Australia

Dr. Jeffrey Cummings

Cleveland Clinic, Lou Ruvo Center for Brain Health, Las Vegas, Nevada, USA

Dr. Joseph Jankovic

Baylor College of Medicine Medical Center, Houston, Texas, USA

Dr. Anthony Lang

Toronto Western Hospital Research Institute, Toronto, Canada

Dr. Jeffrey Kordower

Rush University, Chicago, Illinois, USA

Dr. Sid Gilman

Hope Clinic Ypsilanti, Michigan, USA

Dr. Glenn Cook

Director, Walter Reed National Military Medical Center, Clinical Neurocardiology Section, NINDS, NIH

Dr. Peter LeWitt

Henry Ford Health System, Detroit, Michigan, USA

Dr. Steven Vernino

University of Texas, Southwestern, Dallas, Texas, USA

Professor Florian Krismer

Medical University, Innsbruck, Austria

Dr. Wassilios Meissner

University Hospital Bordeaux, Bordeaux, France

Dr. Jeremy Schmahmann

Massachusetts General Hospital, Boston, Massachusetts, USA

Dr. Ronald Melki

Paris-Saclay Institute of Neuroscience, Saint-Aubin, France

Professor Shoji Tsuji

Medical Genome Center, University of Tokyo Hospital, Tokyo, Japan

Dr. Michael Schlossmacher

Ottawa Hospital Research Institute, Ottawa, Ontario, Canada

Professor Gal Bitan

University of California - Los Angeles, Los Angeles, California, USA

Dr. Wendy R. Galpern

National Institute of Neurological Disorders and Stroke at the National Institutes of Health in Bethesda, Maryland, USA

Dr. Virginia Man-Yee Lee

University of Pennsylvania, Philadelphia, Pennsylvania, USA

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