Brain donations could help researchers find the cause(s), more treatments and a cure for MSA. The examination of brain tissue is vital in this research process. A brain donation involves a simple procedure and it does not hinder the funeral or any burial plans. In some cases, the cost of brain procurement (when a technician removes it and sends it to a brain bank) can be offset by a grant from an institution or charity.
For many, a brain donation is the ultimate gift for generations to come – because MSA brain research could help bring about more treatments, more ways to help diagnose MSA and eventually, a cure!
If you are a patient and are considering a brain donation, please contact us, using the information below. There are several institutions in US, Canada and other countries as well, that are currently doing MSA related brain research and desperately need brain donations. There is a place on the form to indicate the choice of brain bank, if applicable.
For families in the USA or Canada, we will help you facilitate a brain donation. Because Defeat MSA is an IRS approved public charity, we do not collaborate with nor support any 3rd party profit-driven brain procurement organizations or companies.
Defeat MSA does not require a fee nor do we request any money from you, in order to help you donate a brain to any brain bank.
Regarding why we ask for your power of attorney: brain banks generally require the contact information for the donor’s power of attorney and the current physician, in addition to the donor information.
All information submitted on this form is strictly confidential. No specifics will be shared with the brain bank until we make our first contact with you as the potential donor or your personal representative.
If you have been diagnosed with MSA, are interested in donating your brain and need help facilitating this ultimate and lasting gift, please call us toll free: 1 855 542-5672 (1 855 KICK-MSA) or email us: email@example.com
If calling, please leave your name, number, reason for your call and best time to return your call. Thank You!
Dr. Wouter Peelaerts
Member, Science and Medical Advisory Board
Sticking with Multiple System Atrophy
Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement.
Several neurodegenerative disorders are caused by aggregates of a single protein known as alpha-synuclein. In collaboration with CNRS and the University of Antwerp, KU Leuven neurobiologists have discovered that the shape of these aggregates - 'cylinders' or 'ribbons'...
A SPECIAL THANKS TO OUR MSA RESEARCHERS & HEALTH PROFESSIONALS AROUND THE WORLD!
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