CONGRATS TO OUR FRIEND DAVID MARMION ON HIS NEW MSA RESEARCH!
“These results suggest that T cell priming and infiltration into the CNS are key mechanisms of disease pathogenesis in MSA, and therapeutics targeting T cells may be disease modifying.” Click here to read about his study.
“Viral-based rodent and nonhuman primate models of multiple system atrophy: Fidelity to the human disease” Click to read the study here.
Photo Below: David Marmion helps #KICKMSA
“Targeting α-synuclein by PD03 AFFITOPE® and Anle138b rescues neurodegenerative pathology in a model of multiple system atrophy: clinical relevance” (2020); Click here to read the open access research study about a new compound
NOTE: Due to the current global Covid-19 Pandemic, some brain banks are not back to full capacity in their operations. After completing the form below, we will discuss current options given this pandemic.
About Brain Donations:
Brain donations could help researchers find the cause(s), more treatments and a cure for MSA. The examination of brain tissue is vital in this research process. A brain donation involves a simple procedure and it does not hinder the funeral or any burial plans. In some cases, the cost of brain procurement (when a technician removes it and sends it to a brain bank) can be offset by a grant from an institution or charity.
For many, a brain donation is the ultimate gift for generations to come – because MSA brain research could help bring about more treatments, more ways to help diagnose MSA and eventually, a cure!
If you are a patient and are considering a brain donation, please contact us, using the information below. There are several institutions in US, Canada and other countries as well, that are currently doing MSA related brain research and desperately need brain donations. There is a place on the form to indicate the choice of brain bank, if applicable.
For families in the USA or Canada, we will help you facilitate a brain donation. Because Defeat MSA Alliance is an IRS approved public charity, we do not collaborate with nor support any 3rd party profit-driven brain procurement organizations or companies.
Defeat MSA Alliance does not require a fee nor do we request any money from you, in order to help you donate a brain to any brain bank.
Regarding why we ask for your power of attorney: brain banks generally require the contact information for the donor’s power of attorney and the current physician, in addition to the donor information.
All information submitted on this form is strictly confidential. No specifics will be shared with the brain bank until we make our first contact with you as the potential donor or your personal representative.
If you have been diagnosed with MSA, are interested in donating your brain and need help facilitating this ultimate and lasting gift, please call us toll free: 1 855 542-5672 (1 855 KICK-MSA) or email us: braindonation@defeatmsa.org
If calling, please leave your name, number, reason for your call and best time to return your call. Thank You!
We are delighted to hear that Dr Patrik Brundin, a strong advocate for the MSA
Keeping Steady – The Redwood Study Visit for more Information: www.redwood-study.com OR https://clinicaltrials.gov/ct2/show/NCT03829657
Dr. Janice Holton
University College London, London, United Kingdom
Professor Gregor Wenning
Medical University, Innsbruck, Austria
Dr. Naill Quinn
University College London, London, United Kingdom
Dr. Wassilios Meissner
University Hospital Bordeaux, Bordeaux, France
Dr. Patrik Brundin
Van Andel Research Institute, Grand Rapids, Michigan, USA
Dr. David Robertson
Vanderbilt Autonmic Dysfunction Center, Nashville, Tennessee, USA
Dr. Thomas Chelimsky
Medical College of Wisconsin, Wauwatosa, Wisconsin, USA
Dr. Peter LeWitt
Henry Ford Health System, Detroit, Michigan, USA
Dr. Edwin George
Wayne State University, Detroit, Michigan, USA
Dr. Philip Low
Mayo Clinic, Rochester, Minnesota, USA
Dr. Ryan Walsh
Barrow Neurological Institute, Phoenix, Arizona, USA
Dr. Steven Vernino
University of Texas, Southwestern, Dallas, Texas, USA
Dr. Pravin Khemani
Swedish Neuroscience Institute, Seattle, Washington, USA
Dr. Praveen Dayalu
University of Michigan, Ann Arbor, Michigan, USA
Dr. Chuck Ide
Weestern Michigan University, Kalamazoo, Michigan, USA
Professor Florian Krismer
Medical University, Innsbruck, Austria
Dr. Horatio Kaufmann
Dysautonomia Center, New York University, New York, New York, USA
Dr. Vik Khurana
Brigham and Women’s Hospital, Harvard Medical School, Cambridge, Massachusetts, USA
Dr. Roy Freeman
Beth Israel Deaconess, Boston, Massachusetts, USA
Dr. Jeremy Schmahmann
Massachusetts General Hospital, Boston, Massachusetts, USA
Dr. Wolfgang Singer
Mayo Clinic, Rochester, Minnesota, USA
Professor Eliezer Masliah
University of California, San Diego, California, USA
Dr. Michael Janitz
University of New South Wales, Sydney, Australia
Dr. Ronald Melki
Paris-Saclay Institute of Neuroscience, Saint-Aubin, France
Dr. Eduardo Benarroch
Mayo Clinic, Rochester, Minnesota, USA
Dr. Matt Huentelman
T-Gen, Phoenix, Arizona, USA
Dr. Jeffrey Cummings
Cleveland Clinic, Lou Ruvo Center for Brain Health, Las Vegas, Nevada, USA
Professor Shoji Tsuji
Medical Genome Center, University of Tokyo Hospital, Tokyo, Japan
Dr. Shilpa Chitnis
University of Texas Southwestern Medical Center, Dallas, Texas, USA
Professor Glenda Halliday
Sydney Medical School, University of Sydney, Sydney, Australia
Dr. Joseph Jankovic
Baylor College of Medicine Medical Center, Houston, Texas, USA
Dr. Michael Schlossmacher
Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
Dr. Walter J. Koroshetz
National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health, Bethesda, Maryland, USA
Dr. Aaron Ellenbogen
Michigan Institute for Neurological Disorders, Farmington Hills, Michigan, USA
Dr. Anthony Lang
Toronto Western Hospital Research Institute, Toronto, Canada
Professor Gal Bitan
University of California – Los Angeles, Los Angeles, California, USA
Dr. John Q. Trojanowski
University of Pennsylvania, Perelman School of Medicine, Philadelphia, Pennsylvania, USA
Professor Werner Poewe
Innsbruck Medical University, Innsbruck, Austria
Dr. Jeffrey Kordower
Rush University, Chicago, Illinois, USA
Dr. Wendy R. Galpern
National Institute of Neurological Disorders and Stroke at the National Institutes of Health in Bethesda, Maryland, USA
Dr. Paola Sandroni
Mayo Clinic Rochester, Minnesota
Dr. Un J. Kang
Irving Medical Center, Columbia University, New York, New York, USA
Dr. Sid Gilman
Hope Clinic Ypsilanti, Michigan, USA
Dr. Virginia Man-Yee Lee
University of Pennsylvania, Philadelphia, Pennsylvania, USA
Dr. Charbel Moussa
Georgetown University, Washington, DC
Dr. Glenn Cook
Director, Walter Reed National Military Medical Center, Clinical Neurocardiology Section, NINDS, NIH
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