Toll free: 1-855 542-5672 (1-855-KICK-MSA)

MSA RESEARCH

MSA RESEARCH UPDATES

BRAIN DONATIONS

Brain donations could help researchers find the cause(s), more treatments and a cure for MSA. The examination of brain tissue is vital in this research process. A brain donation involves a simple procedure and it does not hinder the funeral or any burial plans. In some cases, the cost of brain procurement (when a technician removes it and sends it to a brain bank) can be offset by a grant from an institution or charity.

For many, a brain donation is the ultimate gift for generations to come – because MSA brain research could help bring about more treatments, more ways to help diagnose MSA and eventually, a cure!

If you are a patient and are considering a brain donation, please contact us, using the information below. There are several institutions in US, Canada and other countries as well, that are currently doing MSA related brain research and desperately need brain donations. There is a place on the form to indicate the choice of brain bank, if applicable.

For families in the USA or Canada, we will help you facilitate a brain donation. Because Defeat MSA Alliance is an IRS approved public charity, we do not collaborate with nor support any 3rd party profit-driven brain procurement organizations or companies. 

Defeat MSA Alliance does not require a fee nor do we request any money from you, in order to help you donate a brain to any brain bank.
Regarding why we ask for your power of attorney: brain banks generally require the contact information for the donor’s power of attorney and the current physician, in addition to the donor information.
All information submitted on this form is strictly confidential. No specifics will be shared with the brain bank until we make our first contact with you as the potential donor or your personal representative.
If you have been diagnosed with MSA, are interested in donating your brain and need help facilitating this ultimate and lasting gift, please call us toll free: 1 855 542-5672 (1 855 KICK-MSA) or email us: braindonation@defeatmsa.org
If calling, please leave your name, number, reason for your call and best time to return your call. Thank You!
  • Contact Information

  • Power of Attorney Information

  • Physician Information

RESEARCHER BLOG

THE EXPERTS

A SPECIAL THANKS TO OUR MSA RESEARCHERS & HEALTH PROFESSIONALS AROUND THE WORLD!

Dr. Janice Holton
University College London, London, United Kingdom

Professor Gregor Wenning
Medical University, Innsbruck, Austria

Dr. Naill Quinn
University College London, London, United Kingdom

Dr. Wassilios Meissner
University Hospital Bordeaux, Bordeaux, France

Dr. Patrik Brundin
Van Andel Research Institute, Grand Rapids, Michigan, USA

Dr. David Robertson
Vanderbilt Autonmic Dysfunction Center, Nashville, Tennessee, USA

Dr. Thomas Chelimsky
Medical College of Wisconsin, Wauwatosa, Wisconsin, USA

Dr. Peter LeWitt
Henry Ford Health System, Detroit, Michigan, USA

Dr. Edwin George
Wayne State University, Detroit, Michigan, USA

Dr. Philip Low
Mayo Clinic, Rochester, Minnesota, USA

Dr. Ryan Walsh
Barrow Neurological Institute, Phoenix, Arizona, USA

Dr. Steven Vernino
University of Texas, Southwestern, Dallas, Texas, USA

Dr. Pravin Khemani
Swedish Neuroscience Institute, Seattle, Washington, USA

Dr. Praveen Dayalu
University of Michigan, Ann Arbor, Michigan, USA

Dr. Chuck Ide
Weestern Michigan University, Kalamazoo, Michigan, USA

Professor Florian Krismer
Medical University, Innsbruck, Austria

Dr. Horatio Kaufmann
Dysautonomia Center, New York University, New York, New York, USA

Dr. Vik Khurana
Brigham and Women’s Hospital, Harvard Medical School, Cambridge, Massachusetts, USA

Dr. Roy Freeman
Beth Israel Deaconess, Boston, Massachusetts, USA

Dr. Jeremy Schmahmann
Massachusetts General Hospital, Boston, Massachusetts, USA

Dr. Wolfgang Singer
Mayo Clinic, Rochester, Minnesota, USA

Professor Eliezer Masliah
University of California, San Diego, California, USA

Dr. Michael Janitz
University of New South Wales, Sydney, Australia

Dr. Ronald Melki
Paris-Saclay Institute of Neuroscience, Saint-Aubin, France

Dr. Eduardo Benarroch
Mayo Clinic, Rochester, Minnesota, USA

Dr. Matt Huentelman
T-Gen, Phoenix, Arizona, USA

Dr. Jeffrey Cummings
Cleveland Clinic, Lou Ruvo Center for Brain Health, Las Vegas, Nevada, USA

Professor Shoji Tsuji
Medical Genome Center, University of Tokyo Hospital, Tokyo, Japan

 

Dr. Shilpa Chitnis
University of Texas Southwestern Medical Center, Dallas, Texas, USA

Professor Glenda Halliday
Sydney Medical School, University of Sydney, Sydney, Australia

Dr. Joseph Jankovic
Baylor College of Medicine Medical Center, Houston, Texas, USA

Dr. Michael Schlossmacher
Ottawa Hospital Research Institute, Ottawa, Ontario, Canada

Dr. Walter J. Koroshetz
National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health, Bethesda, Maryland, USA

Dr. Aaron Ellenbogen
Michigan Institute for Neurological Disorders, Farmington Hills, Michigan, USA

Dr. Anthony Lang
Toronto Western Hospital Research Institute, Toronto, Canada

Professor Gal Bitan
University of California – Los Angeles, Los Angeles, California, USA

Dr. John Q. Trojanowski
University of Pennsylvania, Perelman School of Medicine, Philadelphia, Pennsylvania, USA

Professor Werner Poewe
Innsbruck Medical University, Innsbruck, Austria

Dr. Jeffrey Kordower
Rush University, Chicago, Illinois, USA

Dr. Wendy R. Galpern
National Institute of Neurological Disorders and Stroke at the National Institutes of Health in Bethesda, Maryland, USA

Dr. Paola Sandroni
Mayo Clinic Rochester, Minnesota

Dr. Un J. Kang
Irving Medical Center, Columbia University, New York, New York, USA

Dr. Sid Gilman
Hope Clinic Ypsilanti, Michigan, USA

Dr. Virginia Man-Yee Lee
University of Pennsylvania, Philadelphia, Pennsylvania, USA

Dr. Charbel Moussa
Georgetown University, Washington, DC

Dr. Glenn Cook
Director, Walter Reed National Military Medical Center, Clinical Neurocardiology Section, NINDS, NIH

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