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HELP US DEFEAT MSA NOW
Defeat MSA Alliance is a US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.
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PODCASTS
“Long Live The Brains”
Hosts
Philip Tipton, MD (Mayo Clinic)
&
Kandice Jacobs Robinson, LFDE
Fighting to Defeat MSA: Parts 1 and 2
“Safety Issues in Multiple System Atrophy”
News from Social Media
DefeatMSA Posts from Facebook
Updates of MSA Drugs
Note: This article was written from an industry perspective....
Multiple System Atrophy’s Competitive Landscape 2020 - Mellalta Meets
mellalta.com
Mellalta Meets strongly believe that with no approved treatments for MSA and no regulatory precedent regarding accepted efficacy endpointsMODAG Report - Promising MSA Drug:
Click Here: www.modag.net/images/202000805_MODAG_anle138b_TrialCompletion_MJF_Funding_English.pdf
From Alterity Regarding ATH434 For Patients with MSA. Report: alteritytherapeutics.com/investor-centre/news/2020/08/04/new-data-independently-confirms-and-exte...
MSA Research
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LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
MSA Expert
Spotlight
Patrik Brundin, M.D., Ph.D.
Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan
Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.
List of Publications
Spotlight Links
- “Life on the river” – Reflection by Dr. Patrik Brundin in The Lanclet (neurology journal)
- The Patrik Brundin Lab (VAI)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org
#DefeatMSA #KickMSA #DeFeetMSA
ABOUT
The Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in multiple countries across the world.
Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org
#DefeatMSA #KickMSA #DeFeetMSA
Join the world-wide MSA Awareness initiative
Join the world-wide MSA Awareness initiative
PATIENTS NEED OUR HELP
Defeat MSA Alliance invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
Join the world-wide MSA Awareness initiative
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: legacyfunds@defeatmsa.org, if you are interested in finding out more about this lasting gift.
MSA BLOGS
Caregiver’s Blog
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Researcher’s Blog
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Advocate’s Blog
New Charity and New Partnership Moves Forward – Down Under!
DEFEAT MULTIPLE SYSTEM ATROPHY AUSTRALIA AND NEW ZEALAND, Ltd., a newly formed nonprofit, the first of its kind in Australia and New Zealand has forged a partnership with Defeat MSA Alliance. Already a global leader in the fight against Multiple System Atrophy, the...
BIOHAVEN M-STAR STUDY & COVID19
As was posted in many of the groups last week, Biohaven Pharmaceuticals answered some of our questions regarding their current drug trial amid the coronavirus pandemic period. They composed their answers into a Q and A document. TRIAL PARTICIPANT QUESTIONS AND ANSWERS...
Defeat MSA Announces Sponsorship of Global MSA Research Congress
ST. CLAIR SHORES, MI, February 19, 2020 - DEFEAT MSA ALLIANCE is pleased to announce its support as a primary funder of the 7th International Congress of Multiple System Atrophy: Toward a Cure for Multiple System Atrophy. Defeat MSA Alliance is a newly formed...
Patient’s Blog
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“Defeat MSA Alliance is an amazing organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund promising research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more people in need.”
Elena Fracassa, MS
“I have observed this charity grow since it’s inception. The charity remains true to its objective of sponsoring clinical research, supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program and networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; so the charity also uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
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