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HELP US DEFEAT MSA NOW
Defeat MSA Alliance is a US based 501(c)(3) national charity that aspires to balance support for patients, education of medical professionals, raising public awareness, nurturing promising research and advocacy for the MSA community.
OUR LATEST PRODUCTS
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Unisex Sweatshirt
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Short-Sleeve Unisex T-Shirt
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GIVE HELP, GIVE HOPE
- Help Us Support MSA Research!
- Help Us Support MSA Patients!
- Help Us Support MSA Awareness!
- Help Us Educate Medical Professionals!
- Help Us Advocate for MSA Patients!
- Help Us Defeat MSA Now!
4 Ways to Support Our Efforts:
1) Create a Facebook Fundraiser: https://www.facebook.com/fund/DefeatMSA/
2) Create a Virtual Fundraiser (dedications to a loved one are possible too): https://www.justgiving.com/defeatmsaalliance
2) Donate Directly to Our Secure Website (dedications to a loved one are possible too): www.defeatmsa.org/donate-to-us/
4) Via Check, Send to:
Defeat MSA Alliance, 29924 Jefferson Avenue, Saint Clair Shores, Michigan, 48082, USA
HELP US GIVE HOPE. CLICK OUR LINKTREE TO CHOOSE ONE A FUNDRAISER: https://linktr.ee/defeatmsaalliance
NO AMOUNT IS TOO SMALL – BECAUSE EVERY AMOUNT GIVES HOPE NOW!
Help Put MSA on the Map! Help All Those Impacted By MSA!
FOCUS ON INTERESTS – 2021 CONFERENCE
Pick A Speaker and A Presentation
ON DIAGNOSIS – DR ANTHONY LANG:
ON TREATMENTS – DR EDWIN GEORGE:
“ON GENETICS AND MSA”
– ZIV GAN-OR, MD, PHD:
ON DIFFERENTIAL DIAGNOSIS – DR EDWIN GEORGE:
ON POSSIBLE CAUSE – DR PATRIK BRUNDIN:
“NEW MSA CLINICAL TRIAL – GENE THERAPY”
– AMBER VAN LAAR, MD:
News from Social Media
Defeat MSA Alliance: Defeat Multiple System Atrophy
Defeat MSA Alliance aims to increase AWARENESS, help ALLEVIATE suffering from MSA and ADVANCE resear
Biogen and Eisai shares surge after Alzheimer’s drug trial success
www.ft.com
Pharma groups seek US regulatory approval as clinical trial shows monoclonal antibody treatment slowed disease
TAKEDA MSA STUDY ANNOUNCED:
#defeatmsa #kickmsa #msaresearch #MultipleSystemAtrophy #drugtrials
KEY CLINICAL TRIAL INFO:
https://clinicaltrials.takeda.com/study-detail/ https://www.instagram.com/p/CjH-qjoMhb6/?igshid=YTgzYjQ4ZTY=
The International Congress of Parkinson’s Disease and Movement Disorders wishes to acknowledge the following Bronze supporters: @DefeatMsa & MSA United Consortium, EVER Neuro Pharma Ges.m.h.H, @GEHealthcare, @kinetics_corp, Great Lakes NeuroTechnologies.
Multiple system atrophy prions transmit neurological disease to mice expressing wild-type human α-synuclein https://link.springer.com/article/10.1007/s00401-022-02476-7
Check Our Profile Link for Registration Link #defeatmsa #kickmsa https://www.instagram.com/p/CiKmt4fukmP/?igshid=YTgzYjQ4ZTY=
MSA Research
Patient Programs
MSA Education
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LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
Have A Suggestion? Want to Help Us? Have We Provided Information or Support?
Submit A Public Comment To Help Us. Thank You For Your Help.
“Together, We Can and Will Defeat MSA Forever!”
MSA Expert
Spotlight
Wouter Peelaerts, PhD
Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences from KU Leuven and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinson’s and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017–2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab of Dr. Patrik Brundin at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Alliance’s Scientific Research Section.
List of Publications
Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen – Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science. Vol 168. Pages 299-322.
Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally
Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.
Peelaerts W, Baekelandt V. 2016. ɑ-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256–274.
Spotlight Links
“Sticking With MSA” -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)
Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)
FWO postdoctoral fellowship (2017 – 2020)
Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org
#DefeatMSA #KickMSA #DeFeetMSA
ABOUT
The Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in multiple countries across the world.
Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org
#DefeatMSA #KickMSA #DeFeetMSA
Join the world-wide MSA Awareness initiative
Join the world-wide MSA Awareness initiative
PATIENTS NEED OUR HELP
Defeat MSA Alliance invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
Join the world-wide MSA Awareness initiative
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, community support, patient advocacy or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $50,000 (Platinum), $30,000 (Gold), $10,000 (Silver) and $5,000(Bronze). Please email us: legacyfunds@defeatmsa.org, if you are interested in finding out more about this lasting gift.
MSA BLOGS
Caregiver’s Blog
“On Speech & Swallowing” – (MSA Conference, Pt 6)
Panel 1: Speech & Swallowing - Jennifer Kileny, SLP and Rebecca Wallace, SLP
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
Researcher’s Blog
MSA UNITED RESEARCH CONSORTIUM ADVISORS
HELP DEFEAT MSA! Donate to A Consortium Partner: Defeat MSA Alliance - USA Defeat MSA/Vaincre AMS Canada Defeat MSA Australia and New Zealand, Ltd. (AU-NZ) Combattiamo AMS/MSA Italia Asociación Española Síndrome Shy Drager – Atrofia Multisistémica * Promising...
MODAG Collaboration Update – MSA Drug
Congratulations to MODAG! On behalf of MSA/AMS patients around the world, we are thankful for your efforts! 💜. https://www.tevapharm.com/news-and-media/latest-news/teva-and-modag-announce-licensing-collaboration-for-neurodegenerative-disease-drug-candidate/...
Alterity reports additional support for ATH 434
ALTERITY PRESS RELEASE: MELBOURNE, AUSTRALIA AND SAN FRANCISCO, USA – 4 November 2021: Alterity Therapeutics (ASX: ATH, NASDAQ: ATHE) (“Alterity” or “the Company”), a biotechnology company dedicated to developing disease modifying treatments for neurodegenerative...
Advocate’s Blog
GIVING TUESDAY IS NOVEMBER 30 – PLEASE CONSIDER US!
Giving Tuesday is Nov 30; Help Us Defeat MSA Now! Visit Us To Donate: www.DefeatMSA.org/donate-to-us/ THANK YOU - WE CANNOT CONTINUE OUR EFFORTS WITHOUT YOU!
GIVE THE GIFT OF AWARENESS THIS HOLIDAY!
GIVE AWARENESS FOR THE HOLIDAYS! Help Us Defeat MSA Now! USA STORE: https://defeatmsa.org/shop/ CANADA STORE: https://www.msacanada.ca/shop/ AUSTRALIA-NEW ZEALAND STORE: https://www.msadownunder.org.au/shop/ #defeatmsa #KickMSA #awarenessgear...
WORLD PREMIERE: “GLIMPSES” (NZ) on Saturday, Oct 2, 2021
DEFEAT MSA ALLIANCE is pleased to announce the WORLD PREMIERE of a new documentary from New Zealand: "GLIMPSES" on Saturday, Oct 2, 2021 on the last day of the Second Annual All-Community Virtual Conference in honor of WORLD MSA DAY - OCTOBER 3, 2021. This free film...
Patient’s Blog
“Physical & Occupational Therapy” – (MSA Conference, Pt 7)
Panel 2: Physical & Occupational Therapy - Michele Weaver, PT and Kerri Vryhof, OTR
“Current Treatments”- Dr. George (MSA Conference, Pt 3)
"Current Treatment Options for MSA" - Edwin George II, MD, PhD, (Wayne State University, Detroit, USA)
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA Alliance is an amazing organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund promising research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more people in need.”
Elena Fracassa, MS
“Defeat MSA Alliance remains true to its objective of sponsoring clinical research, supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program and networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; so the charity also uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
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Blogs & Downloadables
Overview MSA Treatments (EN)
Overview MSA Treatments (SP)
MSA Virtual Conference Flyer
Virtual Conference Booklet (2021)
MSA Awareness Card
Medical Resources
Researcher & Mission Blogs
MSA Patient Pamphlet
Defeat MSA Alliance Brochure
MSA Patient Wallet Card
Download Zoom MSA Backgrounds
