After more than a year of development, Defeat MSA, a 501 (c) (3) Public Non-Profit based in the US, is pleased to announce the official launch of the GLOBAL ONLINE SUPPORT HUB (GOSH), a new free video-chat platform for patients with neurological diseases. The Global Hub is thought to be the first independent video chat platform designed for people with brain diseases.

The HUB includes a web based portal in addition to free downloadable Apple and Android apps that enable mobility limited patients to privately connect with others, in disease-specific patient groups.

The HUB will help patient communities, throughout the world, regardless of the neurological condition, to establish support groups with others in a convenient and secure way. The only requirements for adult patient users will be internet capability, a computer or mobile device and a group moderator who is trained in the basic functions of the hub.

Defeat MSA would like to thank the following collaborators for their efforts in the development of this invaluable patient resource: our digital hub partner, Prologic Technologies, our WebRTC partner, TokBox Inc. and our beta testing company, Test.io. We would also like to thank the following individuals for their tireless efforts and encouragement: Mike Smith (Lubbock, Texas), Pam Smith Howells (Wasilla, Alaska), Philip Fortier (Detroit, Michigan) and Dr. Pratik Bhattacharya (Detroit, Michigan).

The Hub was inspired by the wisdom and longtime support of Charlene Hurley Soleau (RIP), Defeat MSA’s Patient Advocate and former Board Member, who passed away in February of 2018. This Hub is dedicated to her. She lives forever in our hearts. May she soar with the angels!

Defeat MSA is an inclusive US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research. Defeat MSA invites all other related charities, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

The hub is an invaluable tool to help patients and caregivers maintain their independence while combating the usual feelings of isolation, that come with a diagnosis.

Dr. Pratik Bhattacharya, Defeat MSA Research Board

Now, for the first time, we have a dedicated way to connect those who are facing devastating brain diseases, from Detroit to Yellowknife, Limerick to Nairobi, Manila to Rio and everywhere in between.

Ms. Elena Fracassa, Defeat MSA Board

 

JOIN NOW, Visit www.BrainPatient.org

Or SEARCH FOR:

Global Online Support Hubin the Apple App Store or the Google Play Store.