FINANCIALS

Non-Profit Status

Defeat MSA Alliance is a Federally Tax Exempt Non-Profit with 501(c)(3) approval according to the Internal Revenue Code. Contributions to the Foundation are deductible under 170 of the IRS Code. It is qualified to receive tax deductible bequests, devises, transfers or gifts under section 2055, 2106 or 2522 of the Code. The charity is further classified as a public charity.

Other 990s are available upon request. Thank you for your support!

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MSA Patient Support, Awareness and  Education Funding

A portion of funds collected by Defeat MSA Alliance from donations and other funding sources will be directed toward efforts to help patients currently suffering from the disease, to support the education of medical professionals and to develop awareness campaigns. In order to conduct these activities, to do so in the most economically viable way and to have a greater impact, Defeat MSA Alliance will work with our partnering charities to bring about our support, educational and awareness objectives.

MSA Curative Research Funding

Another portion of funds collected by Defeat MSA Alliance from donations and other funding sources is directed toward efforts to cure and/or slow the progress of the disease. In this regard, we foster promising research that is closest to clinical application and in order to do so in the most economically viable way, Defeat MSA Alliance consults both with members of its own volunteer research advisory board and with others, such as researchers on staff at the Van Andel Research Institute (Grand Rapids, Michigan). As with all of our activities, our aim is always to maintain the highest of professional ethics, organizational integrity and financial transparency.

The board of directors, the charity director and all the advisers associated with Defeat MSA Alliance are completely volunteer. There are no salaried employees.

Defeat MSA Alliance is the ONLY major US nonprofit dedicated to Multiple System Atrophy which is completely operated by volunteers. This means that every dollar donated goes directly to the cause and not towards the salaries of any executives or business administrator.

Defeat MSA Alliance is also the ONLY major US nonprofit dedicated to Multiple System Atrophy which is led by someone with a confirmed biological connection to MSA. Why does this matter? Because with direct experience comes passion and a personal heartfelt devotion to the cause of defeating MSA!

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