HELP US DEFEAT MSA NOW!
Realizing that much of the current attention is focused on more widely known diseases, Multiple System Atrophy is overlooked. MSA patients are confronted with a dim prognosis and left with few options. Staffed entirely by a small group of volunteers, Defeat MSA’s mission is four-fold:
To build a community that truly serves those that suffer from MSA.
To cultivate promising research into treatments that will slow MSA.
To promote better education among physicians who treat MSA.
To raise greater public awareness about living with MSA.
LATEST NEWS AND UPDATES
PRESS RELEASE: *NEW* GLOBAL ONLINE PATIENT SUPPORT HUB (FREE & MULTILINGUAL)After more than a year of development, Defeat MSA, a 501 (c) (3) Public Non-Profit based in the US, is pleased to announce the official launch of the GLOBAL ONLINE SUPPORT HUB (GOSH), a new free video-chat platform for patients with neurological diseases. The Global Hub is thought to be the first independent...
MSA Awareness Proclamations 2018 – The Status List!Defeat MSA joins with other American MSA charities in an effort to proclaim March as MSA Awareness Month in every state in the union as well as in the US Congress and Senate! Defeat MSA succeeded in obtaining MSA awareness March proclamations in 2013, 2017 and 2018! We ask for your help in...
OUR GLOBAL MSA AWARENESS CAMPAIGN
The MSA Awareness Shoe ™ has one mission: to raise awareness about Multiple System Atrophy. It has traveled to dozens of countries, rubbed shoulders with notable people, visited famous landmarks and enjoyed the loving embrace of MSA patients everywhere! The Shoe’s global journey is undertaken in the memory of all those that have succumbed to the “Beast” – which is called MSA and in support of those still fighting this terrible disease.
HELP US DEFEAT THE BEAST! Donate Here Now
Help Us – Help All Those Who Suffer From Multiple System Atrophy!
Let’s keep the Shoe moving, spreading MSA awareness, far and wide, everywhere and with everyone! To learn more about this amazing Shoe, follow its globetrotting journey or to host one of the 7 official MSA shoes for your event, click the link below!
(Recognized By “Great NonProfits”)
I have observed this charity grow since it's inception. The charity remains true to its objective of supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program, networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a shoe as a symbolic marathon to spread awareness among lay public about this devastating disease.
Defeat MSA is a truly powerful organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to grow and prosper.