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HELP US DEFEAT MSA NOW

Defeat MSA Alliance is a US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.

PRINT A SIGN TO THANK FRONTLINE WORKERS!

PRINT OFF A WINDOW SIGN FOR OUR FRONTLINE WORKERS FIGHTING AGAINST COVID-19!

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PODCASTS

“Long Live The Brains”

Hosts

Philip Tipton, MD (Mayo Clinic)

&

Kandice Jacobs Robinson, LFDE

Fighting to Defeat MSA: Parts 1 and 2

“Safety Issues in Multiple System Atrophy”

News from Social Media

What red flags do you watch for in a PD diagnosis that might make you consider a-typical parkinsonism? Any specific to MSA?  https://onlinelibrary.wiley.com/doi/10.1002/mds.28126

First Virtual Global MSA Conference; Saturday, Sept 19, 2020; http://www.msa-conference.org Registration opening soon! #defeatmsa #kickmsa #msaconference #msaunited #msaresearch #msawarrior

Project Euphonia, a Google Research project, is focused on improving how systems recognise impaired speech, and helping people be better understood in everyday life.
If you have difficulties with speech you may be able to take part. Find out more here - http://ow.ly/NAId50AK7hs

LOOKING FOR OTHER WAYS TO GET INVOLVED?

LOOKING FOR OTHER WAYS TO GET INVOLVED?

MSA Expert
Spotlight

Patrik Brundin, M.D., Ph.D.

Patrik Brundin, M.D., Ph.D.

Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan

Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s  as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.

List of Publications

Scholia List of Publications

Spotlight Links

 

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org

#DefeatMSA #KickMSA #DeFeetMSA

ABOUT

The Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in multiple countries across the world.

Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org

#DefeatMSA #KickMSA #DeFeetMSA

Join the world-wide MSA Awareness initiative

Join the world-wide MSA Awareness initiative

PATIENTS NEED OUR HELP

Defeat MSA Alliance invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

Join the world-wide MSA Awareness initiative

OUR LEGACY GRANTS

OUR

LEGACY

GRANTS

The Defeat MSA special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: legacyfunds@defeatmsa.org, if you are interested in finding out more about this lasting gift.

MSA BLOGS 

Caregiver’s Blog

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Researcher’s Blog

“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

Sticking with Multiple System Atrophy

Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement.

Advocate’s Blog

“Defeat MSA Announces Global Research Consortium” (07-16-20)

“Defeat MSA Announces Global Research Consortium” (07-16-20)

FOR IMMEDIATE RELEASE “Defeat MSA Announces Global Research Consortium”  (07/16/2020) DETROIT, MI—Defeat MSA Alliance announces the formation of a new global consortium of charities for people living with Multiple System Atrophy. The consortium, officially named...

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SERGEY POVALIAEV SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DUSTIN AND CARLA RIOS DAMIEN GAFFNEY VINCE NEIL AND RAIN HANNAH MIKE BOYLAN, JR DR GREG AUNER DR...

Patient’s Blog

“Defeat MSA Alliance is an amazing organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund promising research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more people in need.”

Elena Fracassa, MS

“I have observed this charity grow since it’s inception. The charity remains true to its objective of sponsoring clinical research, supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program and networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; so the charity also uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “

Dr. Pratik Bhattacharya, MD, MPH

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