“Defeat MSA is a truly powerful organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to grow and prosper.”

Elena Fracassa

“I have observed this charity grow since it’s inception. The charity remains true to its objective of supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program, networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “

Pratik B