Toll free: 1-855 542-5672 (1-855-KICK-MSA)

HELP US DEFEAT MSA NOW

Defeat MSA Alliance is a US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.

REQUEST A FREE COVID CARE KIT &

PRINT A SIGN TO THANK FRONTLINE WORKERS!

REQUEST A FREE COVID CARE KIT   OR   PRINT OFF A WINDOW SIGN FOR

OUR FRONTLINE WORKERS FIGHTING AGAINST COVID-19!

#STAYHOME    #SAVELIVES    #MSAWARRIORS    #MASKYOURSELF


PODCASTS

“Long Live The Brains”

Hosts: Dr. Philip Tipton (Mayo Clinic)

&

Kandice Jacobs Robinson LFDE (Kandice Jacobs Creations)

Fighting to Defeat MSA: Parts 1 and 2

“Safety Issues in Multiple System Atrophy”

News from Social Media

DefeatMSA Posts from Facebook

HAPPY FATHERS DAY TO ALL FATHERS...

CHANGE YOUR PIC TO YOUR FATHER & THEN CLICK TO TRY FRAME!

--- For more frames, visit your page:
defeatmsa.org/public-awareness/facebook-frames/
... See MoreSee Less

View on Facebook

Our Beloved MSA Awareness Shoe is back on the road after helping to #KickMSA in Brisbane, AU & surrounding areas! Thank you Pamela and Richard Woolford for hosting our dear shoe! Now it returns to home base, Melbourne, learn about It: http://www.MSAdownunder.org.au

Just posted a photo @ Brisbane, Queensland, Australia https://www.instagram.com/p/CATn5M0BzR0/?igshid=k73jncm7bczn

LOOKING FOR OTHER WAYS TO GET INVOLVED?

LOOKING FOR OTHER WAYS TO GET INVOLVED?

MSA Expert
Spotlight

Patrik Brundin, M.D., Ph.D.

Patrik Brundin, M.D., Ph.D.

Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan

Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s  as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.

List of Publications

Scholia List of Publications

Spotlight Links

 

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org

#DefeatMSA #KickMSA #DeFeetMSA

ABOUT

The Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in multiple countries across the world.

Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org

#DefeatMSA #KickMSA #DeFeetMSA

Join the world-wide MSA Awareness initiative

Join the world-wide MSA Awareness initiative

PATIENTS NEED OUR HELP

Defeat MSA Alliance invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

Join the world-wide MSA Awareness initiative

OUR LEGACY GRANTS

OUR

LEGACY

GRANTS

The Defeat MSA special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: legacyfunds@defeatmsa.org, if you are interested in finding out more about this lasting gift.

MSA BLOGS 

Caregiver’s Blog

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Researcher’s Blog

“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

Sticking with Multiple System Atrophy

Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement.

Advocate’s Blog

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DAMIEN GAFFNEY MIKE BOYLAN, JR JEANNINE BRAGG CRAIG STEVENS SUSAN YOUNG ROSEMARY DU MONT OLIVIA ROMANO CHERIE...

New Charity and New Partnership Moves Forward – Down Under!

New Charity and New Partnership Moves Forward – Down Under!

DEFEAT MULTIPLE SYSTEM ATROPHY AUSTRALIA AND NEW ZEALAND, Ltd., a newly formed nonprofit, the first of its kind in Australia and New Zealand has forged a  partnership with Defeat MSA Alliance. Already a global leader in the fight against Multiple System Atrophy, the...

BIOHAVEN M-STAR STUDY & COVID19

BIOHAVEN M-STAR STUDY & COVID19

As was posted in many of the groups last week, Biohaven Pharmaceuticals answered some of our questions regarding their current drug trial amid the coronavirus pandemic period. They composed their answers into a Q and A document. TRIAL PARTICIPANT QUESTIONS AND ANSWERS...

Patient’s Blog

“Defeat MSA Alliance is an amazing organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund promising research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more people in need.”

Elena Fracassa, MS

“I have observed this charity grow since it’s inception. The charity remains true to its objective of sponsoring clinical research, supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program and networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; so the charity also uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “

Dr. Pratik Bhattacharya, MD, MPH

LOOKING FOR OTHER WAYS TO GET INVOLVED?

JOIN THE MOVEMENT TO #DEFEATMSA

 

Follow us on social media

Follow us on Twitter

Follow us on Facebook

Follow us on Instagram

Follow us on YouTube

Follow us on LinkedIn

 

Follow us on social media

Follow us on Twitter

Follow us on Facebook

Follow us on Instagram

Follow us on YouTube

Follow us on LinkedIn


Copyright 2020 | Defeat MSA Alliance - 501(c)(3)

 Privacy Policy

CREATEDBYRIOSMEDIA

Copy link
Powered by Social Snap