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HELP US DEFEAT MSA NOW

Defeat MSA Alliance is a US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the MSA community.

 

 

 

GIVE HELP, GIVE HOPE

  • Help Us Support MSA Research!
  • Help Us Support MSA Patients!
  • Help Us Support MSA Awareness!
  • Help Us Educate Medical Professionals!
  • Help Us Advocate for MSA Patients!
  • Help Us Defeat MSA Now!

4 Ways to Support Our Efforts:

1) Create a Facebook Fundraiser: https://www.facebook.com/fund/DefeatMSA/

2) Create a Virtual Fundraiser (dedications to a loved one are possible too): https://www.justgiving.com/defeatmsaalliance

2) Donate Directly to Our Secure Website (dedications to a loved one are possible too): www.defeatmsa.org/donate-to-us/

4) Via Check, Send to: 

Defeat MSA Alliance, 29924 Jefferson Avenue, Saint Clair Shores, Michigan, 48082, USA

HELP US GIVE HOPE.  CLICK OUR LINKTREE TO CHOOSE ONE A FUNDRAISER:  https://linktr.ee/defeatmsaalliance

NO AMOUNT IS TOO SMALL – BECAUSE EVERY AMOUNT GIVES HOPE NOW! 

Help Put MSA on the Map! Help All Those Impacted By MSA!


FOCUS ON INTERESTS – 2021 CONFERENCE

Pick A Speaker and A Presentation

 

ON DIAGNOSIS – DR ANTHONY LANG:

ON TREATMENTS – DR EDWIN GEORGE:

“ON GENETICS AND MSA”

– ZIV GAN-OR, MD, PHD:

ON DIFFERENTIAL DIAGNOSIS – DR EDWIN GEORGE:

ON POSSIBLE CAUSE – DR PATRIK BRUNDIN:

“NEW MSA CLINICAL TRIAL – GENE THERAPY”

– AMBER VAN LAAR, MD:

News from Social Media

An hour long Question & Answer Session about #MSA Research. Learn the latest from a panel of scientists at the @DefeatMsa conference!

@MXHend @peelaerts_w @ZivGanOr #synuclein #Parkinson

https://youtu.be/MSz8V0lm3ec

Click Our Profile Link to Access Free Conference Registration & Watch Films https://www.instagram.com/p/CUdpRH5Myep/?utm_medium=twitter

LOOKING FOR OTHER WAYS TO GET INVOLVED?

LOOKING FOR OTHER WAYS TO GET INVOLVED?

Have A Suggestion? Want to Help Us? Have We Provided Information or Support?

Submit A Public Comment To Help Us. Thank You For Your Help.

“Together, We Can and Will Defeat MSA Forever!”

    MSA Expert
    Spotlight

    Wouter Peelaerts, PhD

    Wouter Peelaerts, PhD

    Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences from KU Leuven and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinson’s and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017–2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab of Dr. Patrik Brundin at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Alliance’s Scientific Research Section.

    List of Publications

    Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen – Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science. Vol 168. Pages 299-322.

    Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
    *Contributed equally

    Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.

    Peelaerts W, Baekelandt V. 2016. ɑ-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256–274.

     

    Spotlight Links

    “Sticking With MSA” -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)

    Fulbright grantee (2017–2018)

    Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)

    FWO postdoctoral fellowship (2017 – 2020)

    Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)

     

    about the

    Defeat MSA Awareness Shoe – #KickMSA

    The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

    Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org

    #DefeatMSA #KickMSA #DeFeetMSA

    ABOUT

    The Defeat MSA Awareness Shoe – #KickMSA

    The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

    To date, the Shoe has “Kicked MSA” in multiple countries across the world.

    Learn more about the story and the globetrotting journey of the MSA Awareness Shoe here or via www.MSAshoe.org

    #DefeatMSA #KickMSA #DeFeetMSA

    Join the world-wide MSA Awareness initiative

    Join the world-wide MSA Awareness initiative

    PATIENTS NEED OUR HELP

    Defeat MSA Alliance invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

    Join the world-wide MSA Awareness initiative

    OUR LEGACY GRANTS

    OUR

    LEGACY

    GRANTS

    The Defeat MSA special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, community support, patient advocacy or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $50,000 (Platinum), $30,000 (Gold), $10,000 (Silver) and $5,000(Bronze). Please email us: legacyfunds@defeatmsa.org, if you are interested in finding out more about this lasting gift.

    MSA BLOGS 

    Caregiver’s Blog

    MSA AWARENESS WARRIORS ZOOM BACKGROUND

    MSA AWARENESS WARRIORS ZOOM BACKGROUND

    USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero

    Researcher’s Blog

    Alterity Announces Expanded ATH434 Phase 2 Program

    Alterity Announces Expanded ATH434 Phase 2 Program

    ALTERITY PRESS RELEASE - 19 OCTOBER 2021 Alterity Therapeutics Announces Expanded ATH434 Phase 2 Clinical Development Program - Clinical trial to enroll patients with early-stage Multiple Systems Atrophy (MSA) - - Expanding bioMUSE Natural History Study - MELBOURNE,...

    Biohaven Announces Disappointing Results on Verdiperstat

    Biohaven Announces Disappointing Results on Verdiperstat

    VERY DISAPPOINTING NEWS FROM BIOHAVEN RE: VERDIPERSTAT (& M-STAR STUDY) Biohaven remains committed to neuroscience and to the MSA community. They intend to analyze the results further. Biohaven has met with Defeat MSA Alliance all along in this process and...

    Advocate’s Blog

    WORLD PREMIERE: “GLIMPSES” (NZ) on Saturday, Oct 2, 2021

    WORLD PREMIERE: “GLIMPSES” (NZ) on Saturday, Oct 2, 2021

    DEFEAT MSA ALLIANCE is pleased to announce the WORLD PREMIERE of a new documentary from New Zealand: "GLIMPSES" on Saturday, Oct 2, 2021 on the last day of the Second Annual All-Community Virtual Conference in honor of WORLD MSA DAY - OCTOBER 3, 2021. This free film...

    GLOBAL MSA VIRTUAL CONFERENCE: SEPT 24 – OCT 2

    GLOBAL MSA VIRTUAL CONFERENCE: SEPT 24 – OCT 2

    The Defeat MSA Alliance Board of Directors and affiliated charities in the MSA United International Consortium are pleased to announce the Second Annual All-Community Virtual MSA Conference to be held on September 24 - October 2, 2021. This year's conference will...

    Patient’s Blog

    “Defeat MSA Alliance is an amazing organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund promising research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more people in need.”

    Elena Fracassa, MS

    “I have observed this charity grow since it’s inception. The charity remains true to its objective of sponsoring clinical research, supporting patients and families living with this dreadful disease, through support groups, loaner equipment through the loaner closet program and networking on social media to connect families sharing their experiences across the world. This disease does not have a marathon or a 5k run in its name; so the charity also uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “

    Dr. Pratik Bhattacharya, MD, MPH

    LOOKING FOR OTHER WAYS TO GET INVOLVED?

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