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HELP US DEFEAT MSA NOW
Defeat MSA is an inclusive US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.
MSA
AWARENESS MONTH
March is MSA awareness month. This year we are kicking off the month with the 4th Annual #Cake4aCure Campaign.
News from Social Media
DefeatMSA Posts from Facebook
*BREAKING NEWS*
READ JOINT STATEMENT ON COVID19 BY NORD & EURORDIS...
“Steps To Protect Rare Disease Patients”
rarediseases.org/wp-content/uploads/2020/03/NORD-EURORDIS-Rare-Diseases-Europe-Joint-Statement-on...
Defeat MSA Alliance is an active member of both the National Organization of Rare Diseases (NORD) & European Organisation of Rare Diseases (EURORDIS)
#defeatmsa #kickmsa #covid19 #nord #eurordis #protectthemostvulnerable
DR PHILIP TIPTON (MAYO) responds to MSA related questions about safety in this episode of “Long Live The Brains” Our thanks to Defeat MSA volunteer, Susan Young for her help in the program!
#defeatmsa #kickmsa #mayo #msa #neuro
longlivethebrains.libsyn.com/safety-issues-in-multiple-system-atrophy?tdest_id=1813601
Long Live The Brains: Safety Issues in Multiple System Atrophy
longlivethebrains.libsyn.com
In this episode, Dr. Tipton answers listener questions on safety issues faced by people with multiple system atrophy (MSA). Topics include difficulties regulating ones blood pressure and urinary funct...
DR PHILIP TIPTON (MAYO) responds to MSA related questions about safety in this episode of “Long Live The Brains” Our thanks to Defeat MSA volunteer, Susan Young for her help in the program!
#defeatmsa #kickmsa #mayo… https://www.instagram.com/p/B-Ktr9XhM7y/?igshid=d04h6oghevva
DR PHILIP TIPTON (MAYO) responds to MSA related questions about safety in this episode of “Long Live The Brains” Our thanks to Defeat MSA volunteer, Susan Young for her help in the program!
#defeatmsa #kickmsa #mayo… https://www.instagram.com/p/B-KtfVrBCqf/?igshid=mi6l8nojxuwj
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
MSA Expert
Spotlight
Patrik Brundin, M.D., Ph.D.
Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan
Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.
List of Publications
Spotlight Links
- “Life on the river” – Reflection by Dr. Patrik Brundin in The Lanclet (neurology journal)
- The Patrik Brundin Lab (VAI)
about the
MSA Awareness Shoe – #KickMSA
The MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA
about the
MSA Awareness Shoe – #KickMSA
The MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA
Join the world-wide MSA Awareness initiative
Join the world-wide MSA Awareness initiative
PATIENTS NEED OUR HELP
Defeat MSA invites all our friends & allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
Join the world-wide MSA Awareness initiative
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: legacyfunds@defeatmsa.org, if you are interested in finding out more about this lasting gift.
MSA BLOGS
Caregiver’s Blog
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
Researcher’s Blog
“A Path Forward” – Dr. Amanda Woerman (Univ. of Massachusetts, Amherst)
Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from...
“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)
Sticking with Multiple System Atrophy
Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement.
Advocate’s Blog
Defeat MSA Announces Sponsorship of Global MSA Research Congress
ST. CLAIR SHORES, MI, February 19, 2020 - DEFEAT MSA ALLIANCE is pleased to announce its support as a primary funder of the 7th International Congress of Multiple System Atrophy: Toward a Cure for Multiple System Atrophy. Defeat MSA Alliance is a newly formed...
Patient’s Blog
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
Elena Fracassa
Pratik B
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