RAISING AWARENESS ABOUT THE CHALLENGES OF LIVING WITH MSA
Realizing that much of the current attention is focused on more widely known diseases, Multiple System Atrophy is overlooked. MSA patients are confronted with a dim prognosis and left with few options. Therefore, our mission is to receive and administer funds to:
To develop effective treatments to combat the debilitating effects of MSA.
To foster promising research in an effort to slow the progress of MSA.
To nurture collaborative studies into the underlying causes of MSA.
To raise awareness and promote understanding about living with MSA
LATEST NEWS AND UPDATES
Lipid Pathways In Multiple System AtrophyDr Scott Kim is a NeuRA researcher investigating the molecular biology of multiple system atrophy. Here he describes the effects of this rare but fatal neurodegenerative disease on the body and some of the new thinking about what causes it. Multiple system atrophy (MSA) is a degenerative brain disorder that impairs the body’s involuntary functions,...
Prognostic Factors for Survival in Multiple System AtrophyAn 88 year-old male with probable multiple system atrophy-parkinsonism (MSA-P) with at least 4 years of gait instability complicated by fall and cervical fracture, sick sinus syndrome status post pacemaker placement, postural hypotension requiring midodrine and fludrocortisone, achalasia status post BOTOX® injection and dilation, urinary retention status post chronic indwelling Foley catheter presented...
Single Protein Causes Parkinsons’ Disease & Multiple System AtrophySeveral neurodegenerative disorders are caused by aggregates of a single protein known as alpha-synuclein. In collaboration with CNRS and the University of Antwerp, KU Leuven neurobiologists have discovered that the shape of these aggregates – ‘cylinders’ or ‘ribbons’ – determines whether a patient develops Parkinson’s disease or Multiple System Atrophy, respectively. Typical of...
OUR GLOBAL MSA AWARENESS CAMPAIGN
The MSA Shoe has one mission: to raise awareness about Multiple System Atrophy. The Shoe has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The MSA Shoe has become a vehicle for raising awareness about MSA thus helping to support research into the causes and cure of this disease.
To learn more about the story of the MSA Shoe, or to follow its worldwide travel campaign, click on the link below.