People with MSA face challenges learning about research. The International Research Information Registry is a way for MSA community members to provide their contact information and other details, if they wish to be contacted about participating  in experimental drug trials and research studies.

Defeat MSA Alliance (USA) and its MSA United Consortium partners continue to strongly advocate for more drug trials and a more equitable implementation of them worldwide. This informational registry is hosted by Defeat MSA Alliance (USA) but available to anyone diagnosed with MSA (or any related disease) globally. It is completely voluntary and strictly confidential.