PATIENT PROGRAMS
MSA CAREGIVERS BLOG
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“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis… Are we there yet?…No Now?…No When are we going to get there? Said anyone who has taken
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“On the Importance of showing up & trying” – By Kimberly Bohannon
Kimberly S. Bohannon was a caregiver to her husband Steve, who passed from MSA at the age of 49. She regularly writes about her experiences
PATIENT BLOG
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“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24
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On Rainbows and Looking Up with MSA
Good Perspective from MSA Warrior & Defeat MSA Canada/Vaincre l’AMS Canada Board Member @Kelly Murphy!
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“I HAVE MSA & I AM RARE” – Rare Disease Day Video
Defeat MSA Alliance and MSA United International Consortium Celebrates World Rare Disease Day on February 28, 2020 In tribute to all those challenged by multiple
MSA LOANER CLOSET PROGRAM
MSA’s debilitating nature often prevents patients from doing basic, day-to-day activities. Defeat MSA Alliance’s Loaner Closet Program, the only program of its kind for people with MSA in North America, is designed to give MSA patients the durable medical equipment they need to help them deal with the challenges of living with MSA. Although other MSA charities have recognized the value of the program, so far, only Defeat MSA has committed itself to funding and developing the program. We need your help in developing this program further.
Please consider a donation earmarked for the loaner closet. Help us make this program a success!
Below is a list of the equipment that we have been able to acquire or help facilitate an equipment loan to a needy patient:
- Motorized Reclining Wheelchairs
- Manual Reclining Wheelchairs
- Hospital Chairs
- Air Pressured Mattresses
- Assistive Communication Devices
- Cough Assist Machines
- CPAP Machines
Defeat MSA Alliance
29924 Jefferson Avenue
Saint Clair Shores, Michigan 48082
We cannot do this without your help! Please consider a donation directed to this valuable program that benefits people that are suffering so much from Multiple System Atrophy! Any amount, large or small helps.
FACEBOOK ONLINE GROUPS
FOR ALL POLICIES RELATED TO DEFEAT MSA UNITED HOSTED ONLINE AND VIDEO CHAT GROUPS, VISIT THIS PAGE
PRIVATE DEFEAT MSA ALLIANCE/MSA UNITED GROUPS:
https://www.facebook.com/groups/MSAtreatments/
(Defeat MSA Global – MSA Related Treatments, Research & News)
MSA – A Caregivers Journey
https://www.facebook.com/groups/msacaregivers/
MSA Patient Life Affirmations
https://www.facebook.com/groups/msalifeaffirmations/
MSA Clinical Trials
(contact Defeat MSA for admission: defeatmsa@gmail.com)
http://www.facebook.com/groups/MSAgenetics/
(MSA Research Into Genetics Question Discussion)
https://www.facebook.com/groups/msaaunz
(MSA Australia – MSA Oceania)
https://www.facebook.com/groups/MSA.Forever.Friends/
(MSA Forever Friends)
https://www.facebook.com/groups/MSApatientLoaners/
(Defeat MSA Medical Equipment Loaner Closet Program Group)
https://www.facebook.com/groups/DefeatMSAfamily/
(Defeat MSA Family Friends & Volunteers)
https://www.facebook.com/groups/MSAbrothersandsisters/
(Defeat MSA Brothers and Sisters Group)
https://www.facebook.com/groups/MSA.Youngins/
(Defeat MSA Young Onset)
https://www.facebook.com/groups/defeatmsalgbt/
(LGBTQ – Defeat Multiple System Atrophy Alliance)
https://www.facebook.com/groups/KickMSA/
(Kick MSA To Raise Awareness)
https://www.facebook.com/groups/atrofiamultisistemica/
(Atrofia Multisistemica – Spanish MSA Central & South America Group)
https://www.facebook.com/groups/AngelsMSA/
(MSA Angels, Prayers & Spirituality)
https://www.facebook.com/groups/SupportMSA/
(Support Cause – Defeat MSA)
https://www.facebook.com/groups/MSAunitedindia/
(MSA South Asian Greater India Region)
https://www.facebook.com/groups/NordicStates/
(Nordic Region MSA)
https://www.facebook.com/groups/MSACentralEurope/
(MSA Central Europe)
https://www.facebook.com/groups/2587300801546835/
(Defeat MSA Italy – Combattiamo L’AMS)
https://www.facebook.com/groups/763513260457173/
(MSA Awareness Bracelets By Kym)
https://www.facebook.com/groups/MSAawarenessTourUK/
(Defeat MSA Awareness Shoe Tour – UK & Irealand)
DEFEAT MSA UNITED STATES GROUPS:
https://www.facebook.com/groups/defeatmsamidwest
(Defeat MSA Midwest States Friends)
https://www.facebook.com/groups/defeatmsamountain/
(Defeat MSA Mountain States Friends)
https://www.facebook.com/groups/defeatmsanortheast/
(Defeat MSA Northeast States Friends)
https://www.facebook.com/groups/defeatmsasouthwest/
(Defeat MSA Southwest States Friends)
https://www.facebook.com/groups/defeatmsamiddleatlantic/
(Defeat MSA Middle Atlantic States Friends)
https://www.facebook.com/groups/defeatmsapacific/
(Defeat MSA Pacific States Friends)
DEFEAT MSA CANADA GROUPS:
https://www.facebook.com/groups/MSA.AMS.Canada/
(Defeat MSA/AMS Canada National)
https://www.facebook.com/groups/MSACanadian.prairies/
(MSA Canada – The Prairies)
https://www.facebook.com/groups/MSA.Canada.BC/
(MSA Canada – British Columbia)
https://www.facebook.com/groups/MSA.Canada.territories/
(MSA Canada – The Territories & Alaska)
https://www.facebook.com/groups/MSA.Atlantic.Provinces/
(MSA Canada – Atlantic Provinces)
https://www.facebook.com/groups/280874549302384/?ref=share
(AMS/MSA Canada – Quebec)
DEFEAT MSA ALLIANCE PAGES:
https://www.facebook.com/DefeatMSA/
(Defeat MSA – USA Page)
https://www.facebook.com/MovementDisorderMilestones/
(Milestones for MSA Page)
https://www.facebook.com/msaunitedAU (MSA Australia – MSA Oceania Page)
https://www.facebook.com/MSAshoe/
(Where is the MSA Awareness Shoe?)
https://www.facebook.com/Memes4MSA/
(Memes & Graphics Related to MSA)
https://www.facebook.com/defeatmsaunited/
(Defeat MSA United International Page)
https://www.facebook.com/msaawarenessmonth/
(MSA Awareness Month Group)
https://www.facebook.com/NeurologyByDoctorB
(Neurology By Doctor B Page)
https://www.facebook.com/defeatmsacanada/
(Defeat Multiple System Atrophy Canada)
https://www.facebook.com/msaitaly/
(Defeat MSA Italy – Combattiamo L’AMS)
https://www.facebook.com/laughterismed/
(Laughter is the Best Medicine)
https://www.facebook.com/EatCake4MSA/
(Annual Cake-4-a-Cure Campaign By Defeat MSA Alliance)
https://www.facebook.com/groups/defeatmsalgbt/
(Gay, Lesbian, Bisexual, Transgender & Allies MSA Group – LGBTQ)
DISCLAIMER
Any of these online pages published by Defeat MSA Alliance are for informational and support purposes only. The information presented in them should not be used for suggesting any diagnosis or understood as recommending any medicines, tests or treatments. Every visitor should consult with his/her doctor or other health care provider for any medical condition.
Furthermore, Defeat MSA Alliance has used all reasonable care to protect your privacy, ensure confidentiality and maintain a safe and secure online presence. For questions about the website or information contained therein, contact: info@defeatmsa.org