Archives

Dr Patrik Brundin appointed to leadership role at Roche Global

We are delighted to hear that Dr Patrik Brundin, a strong advocate for the MSA cause and a dear friend to Defeat MSA Alliance (US) and our affiliated partners in the MSA United Consortium has been appointed to a top level position at Roche Global, the largest pharmaceutical company in the world. Dr Brundin will […]

“I HAVE MSA & I AM RARE” – Rare Disease Day Video

Defeat MSA Alliance and MSA United International Consortium Celebrates World Rare Disease Day on February 28, 2020 In tribute to all those challenged by multiple system atrophy every day, Defeat MSA Alliance, in partnership with Asklepios BioPharmaceuticals (AskBio), developed this short video – these patients with rare disease have something to say! #defeatmsa #kickmsa #rarediseaseday […]

MOVE4MSA MARCH AWARENESS MONTH

March is our MSA Awareness Month campaign. Please join us this month by “Moving for those who can’t” daily on social media. KICKOFF IS MARCH 1 – START MOVING FOR MSA! We will be sharing photos, videos, exercise tips and facts about MSA to help raise awareness. With awareness comes funding, with funding comes research […]

GIVE THE GIFT OF AWARENESS THIS HOLIDAY!

GIVE AWARENESS FOR THE HOLIDAYS!  Help Us Defeat MSA Now! USA STORE: https://defeatmsa.org/shop/ CANADA STORE: https://www.msacanada.ca/shop/ AUSTRALIA-NEW ZEALAND STORE: https://www.msadownunder.org.au/shop/ #defeatmsa #KickMSA #awarenessgear #Holidays

WORLD PREMIERE: “GLIMPSES” (NZ) on Saturday, Oct 2, 2021

DEFEAT MSA ALLIANCE is pleased to announce the WORLD PREMIERE of a new documentary from New Zealand: “GLIMPSES” on Saturday, Oct 2, 2021 on the last day of the Second Annual All-Community Virtual Conference in honor of WORLD MSA DAY – OCTOBER 3, 2021. This free film will be shown along with 2 other documentaries, […]

GLOBAL MSA VIRTUAL CONFERENCE: SEPT 24 – OCT 2

[et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”3.22″][et_pb_row admin_label=”row” _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.7.3″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”] The Defeat MSA Alliance Board of Directors and affiliated charities in the MSA United International Consortium are pleased to announce the Second Annual All-Community Virtual MSA Conference to be held on September 24 – October 2, 2021. […]

NEWS & VIEWS – June/July Newsletter 2021

NEWS & VIEWS – June/July Newsletter 2021 Don’t Miss Updates on Research, Support, Education, Awareness & Advocacy! https://mailchi.mp/defeatmsa/junejulynewsletter

“On the Importance of showing up & trying” – By Kimberly Bohannon

Kimberly S. Bohannon was a caregiver to her husband Steve, who passed from MSA at the age of 49. She regularly writes about her experiences in a blog on Medium. Today, for the first time, we share an excerpt from Kimberly’s blog about caring for her husband. Are you uncomfortable being around terminally ill family […]

BREAKING NEWS: “Illustrated StoryBook About MSA” Published!

JUNE 11, 2021 FOR IMMEDIATE RELEASE: Defeat MSA Alliance and MSA United International Consortium is pleased to announce the publication of  “The Truly Fantastic Adventures of the MSA Warriors” – America’s first illustrated storybook about our amazing MSA warriors and the globetrotting MSA Awareness Shoe! In this first volume, we read about the Shoe, how […]