Researcher Blog: Woojin Kim & Lipid Dysregulation
Alpha-synuclein is an abundantly expressed neuronal protein that is at the center of focus in understanding a group of neurodegenerative diseases called synucleinopathies. The common feature of synucleinopathies is the presence of intracellular bodies containing aggregates of alpha-synuclein. Two important synucleinopathies are multiple system atrophy (MSA) and Parkinson’s disease (PD). MSA and PD share common […]
3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE
Dr Patrik Brundin appointed to leadership role at Roche Global
We are delighted to hear that Dr Patrik Brundin, a strong advocate for the MSA cause and a dear friend to Defeat MSA Alliance (US) and our affiliated partners in the MSA United Consortium has been appointed to a top level position at Roche Global, the largest pharmaceutical company in the world. Dr Brundin will […]
NEW MSA RESEARCH STUDY-DO YOU HAVE ORTHOSTATIC HYPOTENSION?
Keeping Steady – The Redwood Study Visit for more Information: www.redwood-study.com OR https://clinicaltrials.gov/ct2/show/NCT03829657
GIVE HELP, GIVE HOPE – RAYS OF HOPE HOLIDAY FUNDRAISER!
GIVE HELP, GIVE HOPE – ANNOUNCING THE 2020 RAYS OF HOPE HOLIDAY FUNDRAISER! Help Us Support MSA Research! Help Us Support MSA Patients! Help Us Support MSA Awareness! Help Us Educate Medical Professionals! 4 Ways to Support Our Efforts: Create #JustGiving Holiday Fundraiser (dedications to a loved one are possible too): https://www.justgiving.com/defeatmsaalliance Create #RaysofHope Facebook […]
#GIVINGTUESDAY – ON DECEMBER 1 – FACEBOOK MATCH FUNDRAISER!
Announcing Defeat MSA Alliance #GivingTuesday 2020 Facebook Matching Fundraiser! Facebook has announced up to $100,000 Matching Funds Available on December 1, 2020 for #GivingTuesday. If you are giving this year – please consider helping Defeat MSA with a Facebook Fundraiser, a JustGiving Holiday Fundraiser or a Direct Donation! We Need Your Support This Year! Our […]
“Physical & Occupational Therapy” – (MSA Conference, Pt 7)
Panel 2: Physical & Occupational Therapy – Michele Weaver, PT and Kerri Vryhof, OTR
“On Speech & Swallowing” – (MSA Conference, Pt 6)
Panel 1: Speech & Swallowing – Jennifer Kileny, SLP and Rebecca Wallace, SLP
“Current Treatments”- Dr. George (MSA Conference, Pt 3)
“Current Treatment Options for MSA” – Edwin George II, MD, PhD, (Wayne State University, Detroit, USA)
“Early Days and Mission Pillars” – Dr. B (MSA Conference, Pt 1)
Dr. Pratik Bhattacharya, neurologist and co-founder of Defeat MSA Alliance discusses the charity’s early days, its mission and the main speakers of the conference. (“Welcoming Remarks” – Defeat MSA Alliance Global MSA Conference, Pt 1)
“Is It All in the Head??” – MSA Diagnosis & Defeat MSA
ONLINE GROUPS & VIDEO CHAT SUPPORT SESSIONS GUIDELINES
[et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”3.22″][et_pb_row admin_label=”row” _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.7.3″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] DEFEAT MSA ALLIANCE & MSA UNITED FACEBOOK GROUPS & VIDEO CHAT SUPPORT MEETINGS GUIDELINES (These policies are subject to change without public notice. Your continued membership in a Defeat MSA Alliance and MSA United Consortium […]
“Defeat MSA Announces Global Research Consortium” (07-16-20)
FOR IMMEDIATE RELEASE “Defeat MSA Announces Global Research Consortium” (07/16/2020) DETROIT, MI—Defeat MSA Alliance announces the formation of a new global consortium of charities for people living with Multiple System Atrophy. The consortium, officially named “Defeat Multiple System Atrophy United International,” is comprised of six diverse organizations that span the globe. Each member organization is […]
THANK YOU TO ALL OUR RECENT VOLUNTEERS!
A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SERGEY POVALIAEV SANDRA BETTENHAUSEN JENNIFER KILENY BECCA WEISS MARY BETH MCCORD FLYNN MICHAEL SMITH DUSTIN AND CARLA RIOS DAMIEN GAFFNEY VINCE NEIL AND RAIN HANNAH MIKE BOYLAN, JR DR GREG AUNER DR HORACIO KAUFMANN DR ALESSIO DI […]
BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020
Defeat MSA Alliance and the MSA United International Consortium charities are excited to announce the world’s first MSA virtual conference! The Global MSA Virtual Support Symposium is Free for all and will take place on Saturday, the 19th of September, 2020. We want to express our heartfelt thanks to the following for their vital support […]
New Charity and New Partnership Moves Forward – Down Under!
DEFEAT MULTIPLE SYSTEM ATROPHY AUSTRALIA AND NEW ZEALAND, Ltd., a newly formed nonprofit, the first of its kind in Australia and New Zealand has forged a partnership with Defeat MSA Alliance. Already a global leader in the fight against Multiple System Atrophy, the Alliance now adds a fifth nonprofit to its family of patient advocacy […]
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra in New South Wales Australia. I […]
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis… Are we there yet?…No Now?…No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of “possible/probable MSA” and we were seeing neurologists at the “World-Renowned Cleveland […]
Defeat MSA Leads Kickstarter for New Documentary About MSA!
FOR IMMEDIATE RELEASE: Thursday, August 4, 2016 Contact: Philip Fortier, Director – Defeat MSA Phone: (586) 246-1475 Email: DefeatMSA@gmail.com Defeat MSA Leads Kickstarter for New Documentary About MSA! Defeat MSA is pleased to announce the beginning of the Kickstarter campaign to support “1,000 Dias” (1,000 Days), the first full length feature film about a professional […]
