Now Recruiting – New MSA Drug Trial
For More Info on Inclusion/Exclusion Criteria & Locations, Visit: https://clinicaltrials.gov/study/NCT05923866?cond=Multiple%20System%20Atrophy,%20MSA&term=Ono&rank=1
NEW ORTHOSTATIC HYPOTENSION (NOH STUDY)
LEARN ABOUT THIS STUDY – WITH STUDY CENTERS IN USA AND OUTSIDE OF USA HERE: https://cypress-study.com/ Theravance Biopharma is researching the investigational drug (ampreloxetine) because they believe it may reduce nOH symptoms that interfere with daily activity in MSA patients based on prior clinical trial results. They are running the Phase 3 CYPRESS trial to […]
MSA Drug Repurposing Exploratory Fund
VISIT HERE TO DONATE: WWW.DEFEATMSA.ORG/DONATE
Synuclein 2025 Meeting Cambridge, UK 8th -11th April.
Dr Patrik Brundin appointed to leadership role at Roche Global
We are delighted to hear that Dr Patrik Brundin, a strong advocate for the MSA cause and a dear friend to Defeat MSA Alliance (US) and our affiliated partners in the MSA United Consortium has been appointed to a top level position at Roche Global, the largest pharmaceutical company in the world. Dr Brundin will […]
“I HAVE MSA & I AM RARE” – Rare Disease Day Video
Defeat MSA Alliance and MSA United International Consortium Celebrates World Rare Disease Day on February 28, 2020 In tribute to all those challenged by multiple system atrophy every day, Defeat MSA Alliance, in partnership with Asklepios BioPharmaceuticals (AskBio), developed this short video – these patients with rare disease have something to say! #defeatmsa #kickmsa #rarediseaseday […]
MOVE4MSA MARCH AWARENESS MONTH
March is our MSA Awareness Month campaign. Please join us this month by “Moving for those who can’t” daily on social media. KICKOFF IS MARCH 1 – START MOVING FOR MSA! We will be sharing photos, videos, exercise tips and facts about MSA to help raise awareness. With awareness comes funding, with funding comes research […]
2025 Membership Renewal
Dear Philip,Thank you for completing your NORD Membership renewal! We are thrilled to continue to provide you with the resources and value you have come to expect from NORD. To start, download the updated member toolkit with benefits and resources for your organizational and leadership needs. Please save your 2025 membership badge and be sure to update your website to show […]
Happy New Year From Defeat MSA Alliance & MSA United Consortium
HAPPY NEW YEAR!! May this year increase your hope and happiness! Let’s go forward together to Defeat MSA forever! We thank you for your continued support! www.defeatmsa.org/donate-to-us/ #defeatmsa #kickmsa
On Rainbows and Looking Up with MSA
Good Perspective from MSA Warrior & Defeat MSA Canada/Vaincre l’AMS Canada Board Member @Kelly Murphy!
GIVE THE GIFT OF AWARENESS THIS HOLIDAY!
GIVE AWARENESS FOR THE HOLIDAYS! Help Us Defeat MSA Now! USA STORE: https://defeatmsa.org/shop/ CANADA STORE: https://www.msacanada.ca/shop/ #defeatmsa #KickMSA #awarenessgear #Holidays
WELCOME BOARD MEMBER LISA BILEK!
Lisa Bilek joined the board in 2024. She received her doctorate in Pharmacology and Experimental Neuroscience from the University of Nebraska Medical Center (UNMC). Her research focused on the immunology of neurodegenerative disease. During graduate school, her father was diagnosed with MSA, and she joined the Defeat MSA Board with a strong professional and personal […]
TRIAL NOW RECRUITING – IONIS
INTERESTED IN A RESEARCH STUDY? VISIT THE LINK BELOW TO LEARN MORE: IONIS STUDY: https://ionistrials.com/study/study-to-evaluate-the-safety-tolerability-and-pharmacokinetics-of-ion464-administered-to-adults-with-multiple-system-atrophy-horizon/
TRIAL NOW RECRUITING – ASK BIO
INTERESTED IN THIS RESEARCH STUDY? VISIT THE LINK BELOW TO LEARN MORE: ASK BIO: https://www.askbio.com/multiple-system-atrophy-msa-clinical-trial/
TRIAL NOW RECRUITING – THERAVANCE
INTERESTED IN THIS STUDY? VISIT THE LINK BELOW TO LEARN MORE: THERAVANCE: https://www.cypress-study.com/
TRIAL NOW RECRUITING – ONO
INTERESTED IN THIS STUDY? VISIT THE LINK BELOW TO LEARN MORE: ONO: https://clinicaltrials.gov/study/NCT05923866
“On the Importance of showing up & trying” – By Kimberly Bohannon
Kimberly S. Bohannon was a caregiver to her husband Steve, who passed from MSA at the age of 49. She regularly writes about her experiences in a blog on Medium. Today, for the first time, we share an excerpt from Kimberly’s blog about caring for her husband. Are you uncomfortable being around terminally ill family […]
