Dr Patrik Brundin appointed to leadership role at Roche Global
We are delighted to hear that Dr Patrik Brundin, a strong advocate for the MSA cause and a dear friend to Defeat MSA Alliance (US) and our affiliated partners in the MSA United Consortium has been appointed to a top level position at Roche Global, the largest pharmaceutical company in the world. Dr Brundin will […]
“I HAVE MSA & I AM RARE” – Rare Disease Day Video
Defeat MSA Alliance and MSA United International Consortium Celebrates World Rare Disease Day on February 28, 2020 In tribute to all those challenged by multiple system atrophy every day, Defeat MSA Alliance, in partnership with Asklepios BioPharmaceuticals (AskBio), developed this short video – these patients with rare disease have something to say! #defeatmsa #kickmsa #rarediseaseday […]
MOVE4MSA MARCH AWARENESS MONTH
March is our MSA Awareness Month campaign. Please join us this month by “Moving for those who can’t” daily on social media. KICKOFF IS MARCH 1 – START MOVING FOR MSA! We will be sharing photos, videos, exercise tips and facts about MSA to help raise awareness. With awareness comes funding, with funding comes research […]
Happy New Year From Defeat MSA Alliance & MSA United Consortium
HAPPY NEW YEAR!! May this year increase your hope and happiness! Let’s go forward together to Defeat MSA forever! We thank you for your continued support! www.defeatmsa.org/donate-to-us/ #defeatmsa #kickmsa
On Rainbows and Looking Up with MSA
Good Perspective from MSA Warrior & Defeat MSA Canada/Vaincre l’AMS Canada Board Member @Kelly Murphy!
GIVE THE GIFT OF AWARENESS THIS HOLIDAY!
GIVE AWARENESS FOR THE HOLIDAYS! Help Us Defeat MSA Now! USA STORE: https://defeatmsa.org/shop/ CANADA STORE: https://www.msacanada.ca/shop/ #defeatmsa #KickMSA #awarenessgear #Holidays
“On the Importance of showing up & trying” – By Kimberly Bohannon
Kimberly S. Bohannon was a caregiver to her husband Steve, who passed from MSA at the age of 49. She regularly writes about her experiences in a blog on Medium. Today, for the first time, we share an excerpt from Kimberly’s blog about caring for her husband. Are you uncomfortable being around terminally ill family […]
GIVE HELP, GIVE HOPE – RAYS OF HOPE HOLIDAY FUNDRAISER!
GIVE HELP, GIVE HOPE – ANNOUNCING THE 2020 RAYS OF HOPE HOLIDAY FUNDRAISER! Help Us Support MSA Research! Help Us Support MSA Patients! Help Us Support MSA Awareness! Help Us Educate Medical Professionals! 4 Ways to Support Our Efforts: Create #JustGiving Holiday Fundraiser (dedications to a loved one are possible too): https://www.justgiving.com/defeatmsaalliance Create #RaysofHope Facebook […]
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra in New South Wales Australia. I […]
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis… Are we there yet?…No Now?…No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of “possible/probable MSA” and we were seeing neurologists at the “World-Renowned Cleveland […]
Defeat MSA Leads Kickstarter for New Documentary About MSA!
FOR IMMEDIATE RELEASE: Thursday, August 4, 2016 Contact: Philip Fortier, Director – Defeat MSA Phone: (586) 246-1475 Email: DefeatMSA@gmail.com Defeat MSA Leads Kickstarter for New Documentary About MSA! Defeat MSA is pleased to announce the beginning of the Kickstarter campaign to support “1,000 Dias” (1,000 Days), the first full length feature film about a professional […]
Defeat MSA Alliance Announces Sponsor of Research Congress
ST. CLAIR SHORES, MI, February 10, 2021 – DEFEAT MSA ALLIANCE is pleased to announce its support as a primary funder of the 7th International Congress of Multiple System Atrophy: Toward a Cure for Multiple System Atrophy. In 2020, Defeat MSA Alliance. along with 6 other partnering organizations formed MSA United International, a research and […]
