NEWS & VIEWS - June/July Newsletter 2021 Don't Miss Updates on Research, Support, Education, Awareness & Advocacy! https://mailchi.mp/defeatmsa/junejulynewsletter
Advocate’s Blog
BREAKING NEWS: “Illustrated StoryBook About MSA” Published!
JUNE 11, 2021 FOR IMMEDIATE RELEASE: Defeat MSA Alliance and MSA United International Consortium is pleased to announce the publication of "The Truly Fantastic Adventures of the MSA Warriors" - America's first illustrated storybook about our amazing MSA warriors and...
READ THE LATEST – NEWS & VIEWS, APRIL-MAY 2021
DEFEAT MSA ALLIANCE & MSA UNITED CONSORTIUM APRIL - MAY 2021 NEWSLETTER https://mailchi.mp/defeatmsa/april-may-2021-newsletter
SAVE THE DATE – MSA ANNUAL VIRTUAL CONFERENCE, OCTOBER 1-3, 2021
The Defeat MSA Alliance Board of Directors and affiliated charities in the MSA United International Consortium are pleased to announce the Second Annual All-Community Virtual MSA Conference to be held on October 1-3, 2021. This year's conference will include several...
MSA BLOGS
Caregiver’s Blog
“On the Importance of showing up & trying” – By Kimberly Bohannon
Kimberly S. Bohannon was a caregiver to her husband Steve, who passed from MSA at the age of 49. She regularly writes about her experiences in a blog on Medium. Today, for the first time, we share an excerpt from Kimberly's blog about caring for her husband. ...
MSA AWARENESS WARRIORS ZOOM BACKGROUND
USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero
“On Speech & Swallowing” – (MSA Conference, Pt 6)
Panel 1: Speech & Swallowing - Jennifer Kileny, SLP and Rebecca Wallace, SLP
Researcher’s Blog
*NEW* – Defeat MSA Alliance Request for Research Proposals 2021
FOR IMMEDIATE RELEASE Detroit, Michigan, July 7, 2021--- Defeat MSA Alliance and partnering charities in the MSA United Consortium have announced the first round of the 2021 seed-grant program. Funded proposals will receive a one-year grant of up to $50,000...
Alterity Therapeutics Update on ATH434 – July 1, 2021
Defeat MSA Alliance Board of Directors is pleased to report some good news from Alterity Therapeutics on ATH434, a new drug being developed by the company for the treatment of Multiple System Atrophy. "Alterity is on track to launch the Phase 2 trial of its...
UPDATE – Information from Biohaven RE: Verdiperstat
JUNE 1, 2021 Defeat MSA Alliance Research Program Advisors: Important Questions & Answers from Biohaven RE: Clinical Trial on Verdiperstat Can I still join the trial? Answer: Enrollment for the phase 3 study closed in July of 2020. When are we expected...
Patient’s Blog
“Physical & Occupational Therapy” – (MSA Conference, Pt 7)
Panel 2: Physical & Occupational Therapy - Michele Weaver, PT and Kerri Vryhof, OTR
“Current Treatments”- Dr. George (MSA Conference, Pt 3)
"Current Treatment Options for MSA" - Edwin George II, MD, PhD, (Wayne State University, Detroit, USA)
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
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NEWS & VIEWS – June/July Newsletter 2021
NEWS & VIEWS - June/July Newsletter 2021 Don't Miss Updates on Research, Support, Education, Awareness &...
BREAKING NEWS: “Illustrated StoryBook About MSA” Published!
JUNE 11, 2021 FOR IMMEDIATE RELEASE: Defeat MSA Alliance and MSA United International Consortium is pleased to...
READ THE LATEST – NEWS & VIEWS, APRIL-MAY 2021
DEFEAT MSA ALLIANCE & MSA UNITED CONSORTIUM APRIL - MAY 2021 NEWSLETTER...