Dear Philip,
Thank you for completing your NORD Membership renewal! We are thrilled to continue to provide you with the resources and value you have come to expect from NORD.
To start, download the updated member toolkit with benefits and resources for your organizational and leadership needs.
Please save your 2025 membership badge and be sure to update your website to show your community that you are a member of NORD’s network.
The benefits of NORD membership include access to an extensive network of leaders like yourself and critical resources on board management, research, education, and outreach. Here is a snapshot of how our members engaged with our resources in 2024:
- NORD promoted more than 200 member events, meetings, job postings, awareness days, and more to our 40,000+ X (formerly Twitter) followers and in the NORD monthly eNews, which reaches more than 68,000 viewers.
- More than 250: the number of times members crowdsourced their challenging questions and sought advice from 600+ leaders via our “NORD Member Leaders” Facebook group.
- More than 150 members attended the October 2024 Annual Member Meeting with presentations on patient-focused drug development meetings and engaging industry as well as opportunities to network and form connections.
- NORD granted more than 150 members-only scholarships and complimentary conference registrations, including financial assistance for leaders of member organizations to attend our annual Rare Diseases and Orphan Products Breakthrough Summit®.
This year, we will be rolling out several new resources and benefits for members while continuing to support your organization with our trusted annual benefits:
- One complimentary registration to attend the NORD Rare Diseases and Orphan Products Breakthrough Summit in Washington, D.C., plus the opportunity to apply for a travel and lodging scholarship.
- NORD Claim Your Care, a program to help expand members’ knowledge of health care coverage through comprehensive training sessions, webinars, and one-on-one consultations.
- Networking and mentorship opportunities, including bringing our members together monthly for our Affinity Group meetings
- Resources, guidance and roadmaps for Patient Listening Sessions and Externally Led Patient Focused Drug Development meetings.
- Advocacy Academy, a 90-minute course equipping nonprofessional advocates with advocacy fundamentals, including storytelling, navigating congressional meetings, federal appropriations, and social media outreach, with a focus on specific policy issues and featuring a video on the Orphan Drug Act.
- Complimentary access to BoardSource for you and your leadership team to support excellence in nonprofit governance. Create your free membership profile today with NORD’s exclusive sign up link. Please do not share this link beyond your organization’s board leadership and staff.
We invite you and your team to join us in March to review these benefits and more during our Member Benefits Overview webinar (date TBA). We look forward to working with you in 2025 in support of your mission and to advocate for positive change for all rare disease individuals and their families.
Alone we are rare. Together we are strong.®
Sincerely,
